Who We Are
Connecting Families with a SCN2A Diagnosis
Created in 2016, by a mum of a baby boy, who had recently received a genetic diagnosis of SCN2A related epilepsy, to connect with others in the UK.
It has grown to a large social community not only connecting families in the UK but also globally as well.
A key ambition for SCN2A Families UK is to bring better and new treatments for the conditions involved with SCN2A to the families.
If your family is affected by SCN2A related conditions and would like to join our wonderful community please find the link on our Connections page.